Just heard that the heart consultant has agreed to see D in May !!

 This a major deal, and at least it isn’t a year like he first said !

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 Sorry for not responding sooner… i’ll keep this brief because we haven’t decided what to do yet, and until then I won’t say too much.

 It was a, …..   strange …  check up to say the least.

 The usual ECG , which we had a job to quiten D down, bless her she cried, ( only natural when your getting plastered in wires . )

 The the consultant scanned her for with a ultrasaound for 10 minutes,

 sat down

then said ” OH I was supposed to look at the other side ”

” eerr, I’ll see D in a years time, she wouldn’t let me see all the right areas. ”

( I’m not being funny here, D didn’t not move !!!!  she was too interested watching her heart on the monitor !!! )

We are currently awaiting the confirmation letter of the scan, to see how to proceed with this very unsatisfactory outcome to the scan.


 

 D, has her heart appointment on Thursday,  not life threatning, but it may need sorting.

If you can spare us a thought on Thursday it would be appreciated,

 Basically there is 2 outcomes.

1) Full discharge.

2) Back to Bristol and have the procedure done again.

 It is a ….  worrying time, we thought we were over it, then at the check up they added a year to the final discharge date to be sure. You think a year is a huge time away, but it is amazing how soon it  comes around again.

Surgery is worrying when it is yourself having it, but when your child has to have it, it suddenly blows things out of proportion, remembering the operation nearly 3 yrs ago is bad, but now D being nearly 4 she will be fully aware of what is happening, which makes it harder for us parents……. The worst part was remembering the surgeon saying “Do you want to kiss D good-bye?? “……..   I was furious inside, it wasn’t GOOD-BYE..  only … good-night.for couple of hours.  I keep saying it but before you have children, you can’t put yourself in the shoes of someone with children ( I do not try to make myself out to be something special saying that…. ) but it is true, things change. The amount of love you have for a child is incredible, and undescribable.  and naturally you don’t want any harm to come to them, you want to shield them from harm.

So if you can spare us a thought on Thursday it would be apprecriated.